News & Announcements

Recruiting for the Unexplained Ventricular Fibrillation in the Young Study

June 5, 2019

Dear PACES Members,

We are excited to announce that we are actively recruiting sites for the new study named Unexplained Ventricular Fibrillation in the Young!

The primary objective of this retrospective study is to describe the clinical characteristics and outcomes of patients, greater than 28 days to less than 21 years of age, initially diagnosed as Unexplained Ventricular Fibrillation by the participating center after a comprehensive evaluation. There is limited data available on the natural history and outcomes of UVF, particularly in the young, further complicated by the variability in initial evaluation after presentation. This study will be a retrospective multi-center observational study. Our aim is to describe the clinical characteristics, extent of evaluation, genetic variants, outcomes and ICD utilization in patients initially diagnosed as UVF following resuscitated cardiac arrest as the sentinel event.

We plan to collect retrospective data on up to 100 subjects with UVF. The PACES research committee has approved this study.

No financial compensation is currently available. A prospective study is planned to follow this study. At that point we will be applying for grants to provide financial compensation for that study.

If interested in being part of this study, please contact Lana Tisma-Dupanovic at stisma@cmh.edu or Jennifer Nelson at jnelson@cmh.edu.

Thank you in advance. We are eager and looking forward to working with you!

Lana Tisma-Dupanovic, MD
Mercy Children’s, Kansas City MO
stisma@cmh.edu

Chandra Srinivasan MD
University of Texas, Houston TX
Chandra.Srinivasan@uth.tmc.edu

Seshadri Balaji MBBS
OHSU, Portland OR
balajis@ohsu.edu